What sick baby!?

Welcome! This journal is currently dedicated to our precious daughter Samira. We wanted to chronicle her journey from hospital to home. Please follow along for regular updates on our little Samira Melina.

Samira was diagnosed with larynomalacia as a newborn. Simply put-this is a floppy larynx, which partially compromises her airway. She was undoubtedly a noisy breather, especially after feedings. Her specialist said this would resolve-on it’s own, by age 2, with no treatment needed. She also warned that around 6 months of age, she would sound “worse” but that it will get better, then resolve. So we concluded we have a noisy breather, people may ask questions…so what! Good, right!? Not so much!

Well…..later on, she began having episodes where she was unable to breathe. Like turn blue, unable to breathe! We thought to ourselves “is this what the ENT meant by worse? How could we see our daughter go through this? How can this be what she meant!?” After one very scary 911 call; a very long hospital stay-with RSV, & countless visits to the Emergency Room, we were finally transferred to a children’s hospital. Valley Children’s Hospital of Madera.

Thankfully, the physicians here we very attentive to every story we had to tell. They knew that her laryngomalacia should not cause her to turn blue or be unable to breathe. Granted, she had a virus which causes swelling of the airway, regardless, occasionally turning blue was not something we were willing to accept as “part of laryngomacia territory.”

They agreed further testing should be done to ensure nothing else, anatomically, was causing Samira’s very scary incidents. After several tests, they discovered that Samira was born with a double aortic arch. So to make matters worse, imagine a ring constricting this already compromised, & now swollen airway. This means as soon as she’s fully recovered from her current virus, she will have surgery on her heart.

As I open this journal, an invitation for all to follow, we are currently 4 weeks after her initial RSV diagnosis & 2 weeks away from our surgery date. December 22, 2016.

Please keep our little baby in your prayers as this day approaches. As we spend the coming month in the hospital. As Santa postpones his visit to our house, just a few weeks.

 

52 thoughts on “Our journey from hospital to home

  1. Me

    Thank you for sharing your babys journey to wellness with us. You all, i.e. family , friends, Drs, nurses and anyone else associated with the care and comfort of Samira, are all in our prayers. We pray for quick healing from head to sole and the peace and comfort that only God can give, to get thru this ordeal. You will always be in our hearts. We love u💖😇! GGGma Sinner and Auntie Me🌸

    Reply

  2. Victoria

    We’ll be praying for baby Samira❤️She’s a little trooper and will surpass all the challenges coming ahead, praying for a speedy recovery. If there is anything we can do please let us know. XOXO Mikie, Victoria, Angie, Ricky and lil Mikie❤️

    Reply

  3. Tamara Redmon

    Praying for you all. With my Brooklyn in and out of the hospital with her Crohns, I understand the fear you are feeling. Please know you have many people praying and sending their love.❤️

    Reply

  4. Reta 💜

    We have Baby Samira in our prayers. Praying for a fast recovery. This is an emotional and hard time in your little families life but God is always with you all.

    Reply

  5. Yesenia Camacho

    I can’t imagine how tough this is for you all especially little Samira, but thank god she was referred to a hospital and Drs that are paying better attention to her! Samira and you all are in my prayers always!

    Reply

    1. Heather Post author

      We are so fortunate that we have ended up with the right set of eyes, ears, hearts, & medical degrees. hehe. Thanks Yesenia

      Reply

  6. Tameka

    Praying for you And your family heather……. God is the miracle maker and I’m sure he will have his loving & protecting arms around your angel Samirah. Faith is all you need. 🙏🏼👼🏼🙏🏼 As a mother to a mother I know it’s hard and rough to see our children suffering…..but stay being strong and positive.

    Reply

  7. Kandis

    Praying for a miracle in your baby! Gods stripes were not in vain but for our healing so I will decree and declare healing for your precious baby girl. I look forward to hearing the testimony of Gods miracle!

    Reply

    1. Heather Post author

      He will guide the hand of those caring for her. His angels are all around us, no doubt! We are here after all. In no time will this pass. Thanks for these words Kandis

      Reply

  8. Renae Mateo

    Praying for your precious baby girl and the family! Hope she has a successful surgery and speedy recovery. 💗🙏🏼

    Reply

  9. Sandra Hernandez

    Thank you for sharing!! I can’t imagine the daily worrie as a mother. I will definitely keep your baby girl in my prayers. May God bless you all and wishing her a very quick recovery! Blessings 💕

    Reply

    1. Heather Post author

      Thanks Sandra. I worry, no doubt. I may look like I’m 45 when this is all over with..lol. But we will have a happy healthy baby, so I’m fine with it 😉

      Reply

  10. Stacey & Frank Teixeira

    I had no idea how severe her condition is! Our thoughts and prayers are with your family. If you need anythihng, even just coffee please dont hesistate to call!

    Reply

  11. Mercedes

    Thank you for sharing your story. Wishing the best for your little girl and strength, health, and resilience for you and your family.

    Reply

  12. Krisi

    Oh Heather, I’m sorry your family is going through this. I couldn’t imagine. I will keep your family in my thoughts. Hoping for a fast recovery for your sweet girl. And healing hearts for the rest of you. ❤

    Reply

  13. Gaby Hernandez Vigil

    Prayers for your baby girl & your family! May God’s grace run through the physician’s hands as they care for Samira. You are all in our thoughts. ❤️Love, The Hernandez Family

    Reply

  14. V Santos

    Heather .. my thoughts and prayers are coming your way! Thank you for sharing your journey with us. Stay strong and know you have a village of praying friends and family behind you.

    Reply

    1. Heather Post author

      This is a big reason we decided to share. Not only to keep everyone updated, but to have all those prayer warrior aware and praying for little Samira. Thanks V

      Reply

  15. Renee Snow

    So sorry that you all have to go through this. Our thoughts and prayers are with you all. May God watch over your sweet little baby while she has surgery. Xoxxo

    Reply

  16. Mari

    And I thought my son having allergic reactions and fevers every few weeks was bad, that is nothing compared to Samira. I pray for an amazing recovery and a surgery of success. Its scary to have any type of surgery on babies but especially the heart. You and Neetu are strong and so will Samira!!!

    Reply

    1. Heather Post author

      Indeed, this will be the scariest thing we experience in life. Our babies are our baby, when we see them suffer, we hurt. Little fever or a surgery, they are still our baby

      Reply

  17. Nora

    Thank You for opening and sharing yout journal, I know its very hard for you and baby Samira but Im a girl with alot of Faith and im almost sure your baby is going to get better soon. Starting as today I promise to have your family in my prayers. This shows me your a great mom. Take care

    Reply

  18. Tonya

    Poor honey to you and your family and this little precious girl! Praying for a speedy recovery and a flawless surgery. Hopes of happiness, health and a very strong support system. ❤️ Please keep us updated as I am sure we are all very concerned

    Reply

    1. Heather Post author

      Thanks so much! Part of the reason I opened this journal is for the prayer warriors out there. You all have our back & so does HE! I will be regularly updating this for everyone to follow 🙂

      Reply

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